Just because you are anti coagulated, that does NOT mean your risk of a subsequent PE is zero. Several months before, I had contacted my doctor because I had a bad cold and charlie horses in my legs. Now I have more pain where they inserted the IVC filter in my right groin area and my stomach now. Did you ever get into Sunnybrook? i hope you get your answers and advice, God bless you! Hello Nichole and all on this thread. Here's a link to our PodCasts. My chest C.T. Hello, I just had my 2nd bilateral pulmonary embolism within the year. I also test positive for all 3 antibodies. I had multiple PEs in 2013 and multiple in 2015. It was smaller than the last one, so the experience has been much less dramatic, but still unnerving. PE was found in lungs after accident couldn’t breathe…Doctors dont no where it come from…having trouble breathing now. But let me tell you the pain is all to real. I am on Rivaroxiban for 3-6 months. I feel embarrassed by my need for extra rest and not wanting to be over-scheduled. I am 74 so I am entitled to some mysterious pains. Chest pain. Its lunchtime now and this is still the case even with the morphine. Thank you and good luck, Hi Maura I can assure them that the pain I am feeling is far different, far worse, and every bit as disturbing as the chest symptoms experienced during severe anxiety attacks. I’ve seen every Dr.. nobody knows what is wrong with me. Blood clots in the lungs can cause extensive damage to both the lungs and the heart. But much the same as you…heart good, legs good, no cancer…but what is happening can’t be normal. Tell me that they have NEVER heard of a patient continue to have these symptoms post P.E. Keep hounding, keep talking to your docs. If anyone ever heard of s doctor that understands what al of us in this blog are going through and has advice. Visceral Massage (special training req’d.) Helen. It seems, one minute I feel fairly good, then the pain comes out of nowhere. I posted in 2015. I had a PE following birth of my daughter 2 years ago and still get the chest pain and shortness of breath etc. Went to er & had suffered bi-lateral pe. The doctor feels this is an acceptable number…while I worry about future mortality. To learn more, please visit our. Any advice would be appreciated. If this is a normal reaction to the PE… I can live with that for now. Ice is only thing that helps. I sat down for about 20 minutes and things seem to go back to normal. The next day I show up and get my CT scan two hours later they tell me head to the hospital you have a right upper embolism on you right lung. Medicines: Blood thinners help prevent blood clots. I’m back on thinner, larger dosage at first, now back to 10 mg daily divided into am and pm doses. I feel I am losing my mind! By continuing, I confirm that I am over 16 years old and agree to HealthTap's. However this doctor did something different, He ordered a D-dimer test which came back elevated. I really didn’t know what was going on. Did your hematologist run tests for clotting disorders? I don’t know if this should concern me or not, please I need advice. The pain will also deteriorate if … Your email address will not be published. I was taken the next morning to a bigger hospital where they were better equipped for my condition. You also seemed worried about being at risk of a second pulmonary embolism. My doctors are still not sure why I got these PE’s. Not sure if they have something like it where you are but we went to a 6 session class that was about managing Chronic Illness/Pain and it really helped both of us. I hope you are feeling at least a little better. I knew I was going to die from this whatever I had, so I insisted that they find out what was wrong. I’m a “triple threat” hahaha. I am told I have Costochondritis, after multiple PE’s in Jan 2015. Pain is the body’s alert system…. Donations are tax-deductible. Further investigation by a TEE revealed 3 holes in my heart…which the cardiologist said “has no effect on my blood clots.” I am really scared as I continue to have left side chest pain. My name is Stacey S.. please if someone is reading this..can u please contact me and help .. stacey.gunther40@gmail.com….I would honestly appreciate any advice.. Hi, My name is Saul G. hi Annette , i am also from Australia and was diagnosed with a PE in June 2020. I am sorry I can’t be more helpful. Now that this is the second occurance. Thanks for sharing Chris. It triggers anxiety for me and I go back and forth wondering wether it’s a blood clot. I cope most of the time but have afternoon sleeps, get tired very quickly, short of breath and the pain drags you down. Her blog. This happens suddenly, while doing activities that require power is greater than usual. Just thought I’d share my story too since all so similar! It does not spread to arms and the patient can easily locate the pain. It’s not weather related. I still suffer from exact things as I mentioned above. I wish there was a doctor that would give me one diagnosis instead of several different doctors all giving me something different. 2 years on and I am still experiencing shortness of breath and tightness/pain in my chest. (also terrifying) Or is it just a chronic issue I’ll have to live with caused from the PE? Now she can’t walk to the kitchen without being in pain. I have Factor V Leiden and probably antiphospholipid syndrome. strong..I used to lift weights. Right now I’m dealing with chest pain on my left side and it scares me due to the heart damage. I’m really at the point of just accepting the fact I will live with unexplained breathlessness and chest pain from now on. I have tried.. Xarelto.. Eliquis…(gave me very itchy skin and major headaches) now on Pradaxa …Yet another c.t scan the clot is gone..My Issue Is…I have severe back and chest pain. I’m so sorry about your daughter. Furthermore, Drs don’t want us to ignore pains that could be life threatening. Chest pain is knife-like and especially gets more severe with breathing. The first started with shortness and tightness in my chest when I was working out around March of 2018. Few people do and some can be quite hurtful. around my chest and back, slowly got worse. I have had several recurring pe’s and although we’ve found the reasons (factor VIII deficiency and Apl syndrome), they have yet to find where the clots are actually coming from. How are you going? I can’t work I’m going crazy. They kept him and did a ct scan the next day where they discovered he had multiple PE and one of which was very large. In 2008 I was on my way to climb a mountain and I thought I was having another PE. It is sharp pain too. Common symptoms include unexplained dyspnea and shortness of breath, chest pain, syncope, irritability, panic with a sense of impending doom, hemoptysis, cough, and palpitations. I felt like it was not right and went to a different hospital to get a chest X-ray. I was also diagnosed with costochondritis about 6 mos after a PE in Aug 2014. I agree, I believe there is more damage to the lungs than I am told. Now that it has been four months, I’ve had a number of heart tests including cardiac CAT and Echo cardiograms. I can tell you I have developed painful trigger points along my costochondral joints, my sternum, and at other points in my rib cage. The vascular surgeon was unavailable and the ER docs didn’t think I would survive surgery, so they gave me a systemic tPA. I always feel like there is a balloon in the middle of my chest and it does radiate to my left shoulder and my neck and sometimes is very sharp and lancinating. I know they are not! You are in my prayers. The echo shows good blood flow and no residual strain. They did a chest X-ray said I had double pneumonia with fluid around my lungs put me on two antibiotics and sent me home. My INR was 3.2 and I still developed new clots. The significant discomfort I felt in my chest continued and worsened over the next few months. There is no stretching or massaging the pain away. After nearly 10 days in the hospital on blood thinners I was released. Am in my early days but still have a nagging pain Even if you had a second pulmonary embolism, there is nothing to suggest you would not survive again, as you had suggested, said Dr. Geerts. Went back to the ER about 3 weeks ago to have them give me another CT Scan. People often do not understand that it is now a chronic condition. I take Warafin daily and my INR has stayed around 1.9-2.2. Signs and symptoms include unexplained shortness of breath, a cough that may bring up sputum laced with blood, in addition to chest pain. this seems like a long time for my levels of warfarin to get to even 2.0 plus being on 2 blood thinners at one time truly scares me and to make matters a little more scary I’ve accidentally cut myself shaving and although a pretty good shaving slice I did not bleed any more than normal I’m trusting my Dr knows what he is doing. I have been told that my chest pain is not connected to my P.E. Maybe that is something that’s happening to you too? So far, I have since had 7 separate emergency events and 8 CTA’s. is chest pain common after pulmonary embolism? Call your family physician, who refers you to the ER, who refers you to the specialist, who tells you to go to the ER. It is not uncommon for people with pneumonia to present with back pain or pleuritic‐like chest pain due to the focal lesion. You will want to discuss the duration of your anticoagulation therapy, make sure that the specific anticoagulant you are on is the best one for you and answer any other questions you may have. I spent 5 days in ICU and 2 days in a regular unit. But with a lot of prayer and my medicine I will recover and I’m so glad I’m here to tell my story. I have no helpful suggestions. Can these things occur from healing of the lung or possibly damage? This time the pain was sharper and more painful. I was experiencing chest pains on my left side while I was in the hospital and just had another ekg done on me when i mentioned it to the doc. thinking it was another clot because the pain was so intense and it hurt to breathe in. Thanks for your comment. Sometimes it goes away for a few days, other times it can get up to a level 7. My story started roughly 4 months ago, my first indication that something was wrong was a weird pressure in my chest. I had a baby girl December 1st so the dr said thats probably most likely what caused the clot. My main complaints are that when I do something that’s physically straining on my upper body (eg. Sign up below to receive our newsletter every Thursday morning. Oh my. Three PE’s in less than a month and a half’s time. Hi Janette There has to be others in my shoes……..as well as medical confirmation. My last INR was 2.2 and my heart was checked and it’s fine and all my other numbers/scans are good. After a while those shots hurt. (btw, I’m 59 with a history of perfect heart health). I was revived and semi-conscious. I have no idea what else to do, I try to live a normal life, but there are days I feel so helpless and alone. Noticed swelling in left foot & ankle. We’re u taking any type of hormones? -hydromorphone I use very sparingly only when I really need it because I think that treating this with painkillers is NOT the way to go…..I worry more about being addicted! Then….after days in the hospital on blood thinners, my cardiologist decided to “go in and take a peak to be 100% sure some of this chest pain wasn’t heart related.” My left anterior arteries were all blocked and something on the right…needed a triple bypass but since on ‘Lovanox’ and warfarin couldn’t have that surgery…. Can a chest X-ray see a pulmonary embolism? I am writing this as I pace in my driveway. I then started having clenching chest pains which seemed to come out of nowhere. Heating pad (daily) to help with pain (If it happens again, like before, I wouldn’t have time to dial the phone.). the primary disturbing pain however is deeper and I always feel like there is a balloon in my chest. Have you found any further info on this? i feel your pain , suffered a pulminary embolism in june 2020, have been on eliquis since and whilst i have been told clots have dissolved i still get lung/chest pain, sometimes can be quite painful, yet no doctor can tell me why, want my old life back. I was told when my eliquis is gone I am finished, to just stop taking it. Pulmonary embolism (PE) is the blockage of one or more pulmonary arteries by emboli. (which would be terrifying) Could it be heart-related? If you are not facing a medical emergency your regular doctor should be the first person you see. Mine are anywhere from a couple, up to 40 or so minutes long. Weeks later I could’t breathe, and I thought I was having a heart attack. The doctors want me to be positive and look on the bright side, so I continue to live life as normally as possible. It didn’t pick up my PE. The ER docs know me now and have concluded that I am nothing more than a “drug seeker”. This chest pain cannot be described easily and it seems to change sometimes by the minute. After months that seemed like decades of suffering I finally knew what was wrong with me, admittedly I was terrified at the news, but somewhat relieved that at the very least I finally had the answer I longed-for. It’s almost 3am here in buffalo, ny and i cant sleep….im more so afraid to go to sleep. I’m in pain everyday, and it’s not getting any better. Mind you when I first felt the symptoms I was told I was having an anxiety attack and sent home. It is Sept 2017 and they have decided I have a chronic condition. “There is actually an entity that we call ‘post-PE syndrome’ which is not well described in any medical literature but that all thrombosis specialists are familiar with,” Dr. Geerts wrote in an email. Offers anything for pain other then useless Tylenol two inhalers months past PE. 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